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AD HOC

OUTPUTS NIHR PGfAR NIHR202037

Papers

Development of the face-to-face component and recruitment strategy of a primary care digital social intervention for patients with asthma: Qualitative focus groups and interviews with stakeholders

27 Sep 2024 European Journal of General Practice

Web Application to Enable Online Social Interactions in a Parkinson Disease Risk Cohort: Feasibility Study and Social Network Analysis.

24 May 2024 JMIR Formative Research 

Experiences of Diagnosis, Symptoms and Use of Reliever Inhalers in Patients with Asthma and Concurrent Inducible Laryngeal Obstruction (ILO) or Breathing Pattern Disorder (BPD): qualitative analysis of a UK asthma online community  

14 Aug 2023 J Med Internet Res  

Protocol for a non-randomised feasibility study testing a primary care intervention to promote engagement in an online health community (OHC) for adults with troublesome asthma   

11 July 2023 BMJ Open  

Patient and public involvement in research: the need for budgeting PPI staff costs in funding applications". Research Involvement and Engagement  

25 Mar 2023 Research Involvement and Engagement 

Online and offline social networks in illness management of elderly patients with asthma and Chronic Obstructive Pulmonary Disease: mixed-method study using quantitative social network assessment and qualitative analysis.   

17 May 2022 JMIR Formative Research 

 

Presentations / Abstracts 

Understanding superusers’ and regular users’ engagement in UK Respiratory Online Health Communities and the impact of their interaction on sentiment: A BioBERT Perspective.

Presentation at the Primary Care Respiratory Society (PCRS) Respiratory Conference, Telford, Sept 2024

Self-management behavioural change as a result of engagement with online peer support: Insights from a qualitative analysis of a UK asthma online.

Presentation at the Society for Academic Primary Care Annual Scientific Meeting (SAPC ASM), Bristol, July 2024 

Moderators’ experiences of safety and effectiveness of patients’ engagement in the ALUK asthma OHC.

Presentation at the monthly AUKCAR meeting, London, June 2024

Learning from the AD HOC feasibility study. 

Presentation at the monthly AUKCAR meeting, London, May 2024

Understanding superusers’ and regular users’ engagement in UK Respiratory Online Health Communities and the impact of their interaction on sentiment: A BioBERT Perspective.

Asthma UK Centre of Applied Research Annual Scientific Meeting (AUKCAR ASM)  Reading, April 2024 

Behaviour change following engagement with an online asthma community: Insights from a qualitative analysis.

Asthma UK Centre of Applied Research Annual Scientific Meeting (AUKCAR ASM)  Reading, April 2024 

Optimising opportunities for PPI involvement in Research.

Asthma UK Centre of Applied Research Annual Scientific Meeting (AUKCAR ASM)  Reading, April 2024 

Optimising the safety and effectiveness of the Asthma + Lung UK (ALUK) Asthma Online Health Community (OHC): in-depth interviews with moderators.  

Asthma UK Centre of Applied Research Annual Scientific Meeting (AUKCAR ASM)  Swansea, April 2023 

How might an influx of new users, resulting from the AD HOC trial, impact the Asthma + Lung UK (ALUK) Asthma Online Health Community (OHC)?  

Asthma UK Centre of Applied Research Annual Scientific Meeting (AUKCAR ASM)  Swansea, April 2023 

Co-designing a digital social intervention by primary care clinicians to encourage patients with troublesome asthma to engage with an asthma online health community (OHC): focus group and interview study with stakeholders from East London   

Asthma UK Centre of Applied Research Annual Scientific Meeting (AUKCAR ASM)  Swansea, April 2023 

Effectiveness and cost-effectiveness of A Digital social intervention for people with troublesome astHma prOmoted by primary care Clinicians (AD-HOC).  

Asthma UK Centre of Applied Research Annual Scientific Meeting (AUKCAR ASM) Leeds, June 2022.  

 

Dissemination activities 

QMUL Festival of communities – stand ‘Asthma Alert! Who Helps you cope? 

11-12 June 2022 

 

Awards 

QMUL Public Engagement Award 

Promoting Research in Social Media and Health 

Runner up – Involve award 

2nd best conference poster Award - Karampatakis GD 

Asthma UK Centre of Applied Research Annual Scientific meeting (AUKCAR ASM), Swansea 

 

New Collaborations Brought in by the Programme 

University of Milan Bicocca: Department of Informatics, Milan, Italy  

 

Other funding 

2022 QMUL Centre for Public Engagement (CPE) small award. 

Asthma Alert! Who Helps you cope? 

Capacity Building  

Student Selective Component for fourth-year medical students (SSC4):

2024 - Jie Lin Li, University of Cambridge 
Dissertation Title: How engagement with an online forum may affects self-management behaviour of anxiety in people with asthma? Qualitative analysis of a UK asthma OHC
June 2024
2024 - Jenny Huynh, Barts and The London School of Medicine and Dentistry. QMUL
Dissertation Title: Exploring the Impact of Co-Morbid Depression on Asthma Management and the Therapeutic Potential of Online Health Communities (OHCs): A Qualitative Analysis of a UK Asthma OHC
May 2024
2023 - Samuel Kimber, University of Cambridge 
Dissertation Title: Patients’ and Clinicians’ Views on a Primary Care Digital Social Intervention: a Qualitative, Co-Development Study​

MSc students:

2024 - Alessio Pasinato, MSc Data Science, Department of Informatics, University of Milan Bicocca, Milan, Italy
Dissertation Title: Analysis of interaction dynamics between users and superusers in OHCs
2022 - Emanuela Vaghi, MSc Data Science, Department of Informatics, University of Milan Bicocca, Milan, Italy
Dissertation Title: Content Analysis for Social Good on Health Virtual Communities
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