Dr Emma Lidington, PhDPostdoctoral Research Associate in Cancer Behavioural ScienceEmail: e.lidington@qmul.ac.ukProfileResearchPublicationsProfileI joined the Cancer Prevention Trials Unit (previously at King’s College London) in February 2022 as a post-doctoral research associate in behavioural science. My background is in psychobiology and public health research. I did my PhD on the care experiences and supportive care needs of young adults with cancer. I also conducted similar work focusing on the development and use of patient-reported outcomes in cancer research and routine care and is currently the Publications Editor of the EORTC Quality of Life Group. I moved from the Royal Marsden NHS Foundation Trust where I was a trial manager in a new team implementing a system for digitally collecting patient-reported outcomes in clinical trials. My research now focuses on using behavioural science to understand and encourage participation in cancer prevention clinical trials and the acceptability and psychological impact of new cancer screening programmes. ResearchResearch Interests:• Understanding the psychological impact and acceptability of new screening tests and programmes, for example in relation to a new at-home urine testing kit for bladder cancer and the new capsule sponge test for oesophageal cancer• Understanding barriers and facilitators to uptake of new screening tests and programmes• Exploring the use of patient-reported outcomes to assess relevant psychological concepts• Understanding and improving the inclusivity of population-based cancer screening trials Publications Vrancken Peeters NJMC, Husson O, Kulakowski R et al. (2024). Evaluating a digital tool for supporting people affected by breast cancer: a prospective randomized controlled trial—the ADAPT study. nameOfConference DOI: 10.1007/s00520-024-08923-3 QMRO: qmroHref Peeters NJMCV, Georgopoulou S, Kulakowski R et al. (2024). Patient activation of breast cancer patients: results from the longitudinal ADAPT Study. nameOfConference DOI: 10.1080/28352610.2024.2409286 QMRO: https://qmro.qmul.ac.uk/xmlui/handle/123456789/101247 van der Weijst L, Machingura A, Alanya A et al. (2024). Improving completion rates of patient-reported outcome measures in cancer clinical trials: Scoping review investigating the implications for trial designs. nameOfConference DOI: 10.1016/j.ejca.2024.114313 QMRO: qmroHref Peeters NV, Husson O, Kulakowski R et al. (2024). 272P Evaluating a digital tool for supporting people affected by breast cancer: A prospective randomised controlled trial - The ADAPT study. nameOfConference DOI: 10.1016/j.esmoop.2024.103330 QMRO: qmroHref Pilz MJ, Rothmund M, Lidington E et al. (2023). Content comparison of the EORTC CAT Core, SF‐36, FACT‐G, and PROMIS role and social functioning measures based on the International Classification of Functioning, Disability and Health. nameOfConference DOI: 10.1002/pon.6188 QMRO: qmroHref Schut AW, de Bruin LE, de Rooij BH et al. (2023). Physical symptom burden in patients with desmoid‐type fibromatosis and its impact on health‐related quality of life and healthcare use. nameOfConference DOI: 10.1002/cam4.5985 QMRO: qmroHref Rothmund M, Pilz MJ, Egeter N et al. (2023). Patient‐reported outcome measures for emotional functioning in cancer patients: Content comparison of the EORTC CAT Core, FACT‐G, HADS, SF‐36, PRO‐CTCAE, and PROMIS instruments. nameOfConference DOI: 10.1002/pon.6109 QMRO: qmroHref Schut A-R, Lidington E, Timbergen M et al. (2023). Unraveling Desmoid-Type Fibromatosis-specific Health-Related Quality of Life: Who Is at Risk for Poor Outcomes. nameOfConference DOI: 10.1016/j.ejso.2022.11.192 QMRO: qmroHref Schurr T, Loth F, Lidington E et al. (publicationYear). Patient-reported outcome measures for physical function in cancer patients: content comparison of the EORTC CAT Core, EORTC QLQ-C30, SF-36, FACT-G, and PROMIS measures using the International Classification of Functioning, Disability and Health. nameOfConference DOI: 10.1186/s12874-022-01826-z QMRO: qmroHref Lidington E, Hogan H, Gandolfi A et al. (publicationYear). Assessing the collection and reporting of patient-reported outcome data in interventional cancer trials: a single institution, retrospective systematic evaluation. nameOfConference DOI: 10.1186/s41687-022-00529-9 QMRO: qmroHref Schut A-RW, Lidington E, Timbergen MJM et al. (publicationYear). Unraveling Desmoid-Type Fibromatosis-Specific Health-Related Quality of Life: Who Is at Risk for Poor Outcomes. nameOfConference DOI: 10.3390/cancers14122979 QMRO: qmroHref Lidington E, Giesinger JM, Janssen SHM et al. (2022). Identifying health-related quality of life cut-off scores that indicate the need for supportive care in young adults with cancer. nameOfConference DOI: 10.1007/s11136-022-03139-6 QMRO: qmroHref den Hollander D, Lidington E, Singer S et al. (2022). ‘I thought I had fibroids, and now I don’t’: a mixed method study on health-related quality of life in uterine sarcoma patients. nameOfConference DOI: 10.1186/s12955-022-01971-5 QMRO: qmroHref Darlington A-S, Sodergren SC, Lidington E et al. (2022). Quality of Life in Adolescents and Young Adults with Cancer. nameOfConference DOI: 10.1007/978-3-030-84702-9_17 QMRO: qmroHref Casillas JN, Bolano C, Schwartz LF et al. (2022). A Survivorship Educational Tool for Latino Adolescent and Young Adult Cancer Survivors. nameOfConference DOI: 10.1177/15248399211061709 QMRO: qmroHref Schut A-RW, Lidington E, Timbergen MJM et al. (publicationYear). Development of a Disease-Specific Health-Related Quality of Life Questionnaire (DTF-QoL) for Patients with Desmoid-Type Fibromatosis. nameOfConference DOI: 10.3390/cancers14030709 QMRO: qmroHref van Leeuwen M, Kieffer JM, Young TE et al. (2023). Phase III study of the European Organisation for Research and Treatment of Cancer Quality of Life cancer survivorship core questionnaire. nameOfConference DOI: 10.1007/s11764-021-01160-1 QMRO: qmroHref Casillas JN, Ganz PA, Kahn K et al. (2021). Improving Cancer Survivorship Care for Latino Adolescent, Young Adult Survivors through Community-Partnered Participatory Research.. nameOfConference DOI: 10.35844/001c.29534 QMRO: qmroHref van Eck I, Hollander DD, Lidington E et al. (publicationYear). Health-Related Quality of Life Issues Experienced by Thoracic and Breast Sarcoma Patients: A Rare and Understudied Group. nameOfConference DOI: 10.3390/jcm10225334 QMRO: qmroHref Soomers VLMN, Lidington E, Sirohi B et al. (publicationYear). The Prolonged Diagnostic Pathway of Young Adults (Aged 25–39) with Cancer in the United Kingdom: Results from the Young Adult Cancer Patient Journey Study. nameOfConference DOI: 10.3390/jcm10204646 QMRO: qmroHref Lidington E, Darlington A-S, Din A et al. (publicationYear). Describing Unmet Supportive Care Needs among Young Adults with Cancer (25–39 Years) and the Relationship with Health-Related Quality of Life, Psychological Distress, and Illness Cognitions. nameOfConference DOI: 10.3390/jcm10194449 QMRO: qmroHref Schut A-RW, Timbergen MJM, Lidington E et al. (publicationYear). The Evaluation of Health-Related Quality of Life Issues Experienced by Patients with Desmoid-Type Fibromatosis (The QUALIFIED Study)—A Protocol for an International Cohort Study. nameOfConference DOI: 10.3390/cancers13133068 QMRO: qmroHref Lidington E, Vlooswijk C, Stallard K et al. (2021). ‘This is not part of my life plan’: A qualitative study on the psychosocial experiences and practical challenges in young adults with cancer age 25 to 39 years at diagnosis. nameOfConference DOI: 10.1111/ecc.13458 QMRO: qmroHref Kaal SEJ, Lidington EK, Prins JB et al. (publicationYear). Health-Related Quality of Life Issues in Adolescents and Young Adults with Cancer: Discrepancies with the Perceptions of Health Care Professionals. nameOfConference DOI: 10.3390/jcm10091833 QMRO: qmroHref Lidington E, Darlington AS, Vlooswijk C et al. (2021). Beyond Teenage and Young Adult Cancer Care: Care Experiences of Patients Aged 25–39 Years Old in the UK National Health Service. nameOfConference DOI: 10.1016/j.clon.2021.02.010 QMRO: qmroHref Dumas L, Lidington E, Appadu L et al. (publicationYear). Exploring Older Women’s Attitudes to and Experience of Treatment for Advanced Ovarian Cancer: A Qualitative Phenomenological Study. nameOfConference DOI: 10.3390/cancers13061207 QMRO: qmroHref Lidington EK, Smrke A, Ingley KM et al. (2020). Cancer care and well‐being in adolescents and young adults during the coronavirus disease 2019 pandemic: A UK sarcoma perspective. nameOfConference DOI: 10.1002/cncr.33215 QMRO: qmroHref Younger E, Smrke A, Lidington E et al. (publicationYear). Health-Related Quality of Life and Experiences of Sarcoma Patients during the COVID-19 Pandemic. nameOfConference DOI: 10.3390/cancers12082288 QMRO: qmroHref Staal DP, Vlooswijk C, Mols F et al. (2021). Diagnosed with a common cancer at an unusual age: causal attributions of survivors of adolescent and young adult colorectal cancer. nameOfConference DOI: 10.1007/s00520-020-05502-0 QMRO: qmroHref Lidington E, McGrath SE, Noble J et al. (2020). Evaluating a digital tool for supporting breast cancer patients: a randomized controlled trial protocol (ADAPT). nameOfConference DOI: 10.1186/s13063-019-3971-6 QMRO: qmroHref Casillas JN, Kao RL, Macadangdang J et al. (2018). Improving Fertility Preservation Discussions for Adolescent and Young Adult Male Oncology Patients. nameOfConference DOI: 10.1080/10463356.2018.1502976 QMRO: qmroHref Husson O, Lidington E, Younger E et al. (2018). Young adults: a unique group in cancer epidemiological research. nameOfConference DOI: 10.1016/s1470-2045(18)30029-9 QMRO: qmroHref Casillas J, Goyal A, Bryman J et al. (2017). Development of a text messaging system to improve receipt of survivorship care in adolescent and young adult survivors of childhood cancer. nameOfConference DOI: 10.1007/s11764-017-0609-0 QMRO: qmroHref